A new collaborative community effort is underway to help people with rare invisible illness to find answers faster- with the help of each other sharing what works and what doesn't. The output is a monthly shared newsletter specifically for patients and their caregivers to learn more about Ehlers-Danlos Syndrome (EDS), dysautonomia and mast cell disorders.

We call it EDS S.H.A.R.E. It's where patients, providers, and advocates come together in a joint effort to build a collection of the best resources on hypermobility, EDS, and its common comorbidities. It stands for what we do, we share: Sending Helpful Articles, Research, and Education. Because that's how we'll get through this, together. We are a group of EDS patients and advocates collecting and connecting the dots and sharing what we've found with the community.
 

Plus, you can contribute to the growing knowledge base on how to get diagnosed, get treated, doctor webinars to watch, find helpful products and apps, and get ideas for how survive life with EDS. If you have a suggested news article, a blog, a resource or a new medical research publication you want to pass along, share it here. 

hi zebra! we see you!